Home > health care social media > Social media from my view as an e-caregiver

Social media from my view as an e-caregiver

At the Pink Power Mom awards in Atlanta in October 2011. Social media has had a profound impact in our cancer journey.

As many of you know, my wife — author/blogger Tami Boehmer — touches the lives of many as she lives with Stage IV metastatic breast cancer. And I’ve detailed in this blog and our family and friends blog how Tami used social media to write From Incurable to Incredible: Cancer Survivors Who Beat the Odds

You also may have learned through our connections about my move into health care social media in January 2011.

But I just wanted to give a quick update before I take my daughter to a photo session with her dance team members about how social media has helped me as a “caregiver.” I don’t really like that word, to tell the truth. I simply look at myself as a husband, a friend to the woman I married on May 17, 1997.

Our last appointment with Dr. George Sledge at the IU Simon Cancer Center in Indianapolis drove home to me just how helpful social media has been for me — the husband of a woman who has thrived with breast cancer for more than a decade. I checked in on Foursqure — and shared the check in via Facebook and Twitter. Almost immediately, friends tweeted and commented much-needed messages of support. I can’t tell you how much the prayers and positive thoughts help as you wait to meet with the doc.

Meantime, Tami was getting lots of helpful information on her iPhone from other cancer survivors she had met through her blog, Facebook, Inspire.com, and countless other online sources. Several women who had had their breast cancer spread to the pelvic area like Tami told how they endured a rough patch and are enjoying each day now. One shared a story of how she hiked in Utah. Another told how the treatment options we were considering had played out in her cancer journey.

When Dr. Sledge consulted with us, we were armed with better-informed questions. And we didn’t feel alone, either. All thanks to social media.

I’d like to share more, but it’s time to head out and do my fatherly duties. Perhaps I’ll share more at a later date.  If Tami’s an e-patient, I’m an e-caregiver. Thank God for social media.

 

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